Why has it been so long since I’ve created a post? Well… I’ve been thinking I would die very soon. It’s amazing how much anxiety comes with thinking there’s not much time left, and how trivial keeping up the blog seems at that point. I’ve also been dealing with persistent nausea that has just been resolved by a new nausea medication! (Yay!) So, for the first time in a long time, my hope is renewed and I feel like I can think clearly enough to write.
- I had a kidney biopsy that showed my kidneys will not recover. I’ll need a transplant in order to get off dialysis.
- I had a bone marrow biopsy that showed my blasts are miraculously down to 1%!!!
- There’s a new study that just got published out of Boston of people on dialysis that got kidney and bone marrow transplants from half match donors simultaneously. There were eight participants, two died, six are still alive 4 years out.
- I had an appointment on Friday (my birthday!) with my favorite oncologist. I was hoping for a timeline and a plan, but these things move slowly. His recommendation is for me to go to Boston to get the double transplant. They may or may not accept me into their program, but we should find out in the next couple months. If I can’t go there, I would proceed with a bone marrow transplant here in Madison, and then be looking at a kidney transplant a year or two down the line.
Despite all the craziness of this season of life, I had a great birthday! Jenna came down for a visit, and she came along with Mike and me to plasmapheresis on Friday morning. My team of nurses threw me a little surprise complete with cake, bubbly grape juice and a birthday pig. What more could I want??? We then had poke for lunch, walked around down town, went back to the hospital for the oncology appointment, and laughed out way through writing a country western song while we waited around in waiting rooms.
- Now that my kidneys have been medically proven to be done, it seems a wonderful time for God to heal them miraculously! He did it with my eye… if you remember, the docs had said I would need surgery to fix the blood clot in my eye so I could see again and God healed it with no intervention needed! Please pray my kidneys would be healed in the same way!
- I would love prayer for a speedy set up of the transplant. It could take a long time to coordinate… and I can’t wait to get off dialysis.
- If my kidneys don’t recover, please pray that Erica would pass the kidney transplant screening process, and have no ill repercussions from donating.
- Praise God for lessened nausea! Praise God for my cancer cells being down to 1%! Praise God for all those who are praying for me and my family. How could I ever thank God enough for all the prayers people have prayed on my behalf? They are a joy and a sustaining grace… a gift I don’t deserve… a demonstration that I’m loved… thank you.