Today is a good day.
After just a couple weeks of plasmapheresis, my LDH and haptoglobin have returned to normal range! This means it’s working! This means the hemolysis had stopped! This means the kidneys finally have a fighting chance at recovering. It has been months however of kidney damage… but we’re not losing hope. We are praying God will bring them back. The plan is to continue plasmapheresis (switching out my plasma for donor plasma) for at least another month, then do a kidney biopsy and get a feel for how viable they are. My other blood numbers have also been good, so I haven’t needed any transfusions in over a month!
How is life going?
My days are filled with appointments. Dialysis takes up a lot of time, as does plasmapheresis. These along with the medications I’m on leave me worn out and nauseous. On a more positive note, I’ve been exercising on the elliptical machine and slowly increasing my workout time. I’ve also been gaining a little weight despite the restricting diet.
The kids have been away at Granny and Grandpa’s and that’s left extra time for Mike and me to bond and do fun things around Madison. I’ve been pleasantly surprised by some restaurants that were willing to cook with less salt for me. My favorite thing has been to take it slow in the mornings… sip coffee, chat with Mike, read, pray… no interruptions… no fights over who sits in my lap and knocks over the coffee. But I do miss them. They’re driving back right now, and I’m looking forward to hearing all about their trip.
The biggest highlight of the last week has been getting to spend time with my sisters. They are the joy of my life. We laugh together, and create together, and process life together, and it is ever so sweet. One of the most fun times was writing together. There we were in the hospital, in a tiny curtained cell. I was on a bed hooked up to the pheresis machine and Jenna pulled out her laptop. We’d jokingly come up with the pen name Jerome Vivaldio and fantasized about what sort of ridiculous novels he would write. So, we decided to start a novel by Jerome Vivaldio! We laughed and laughed. The novel is called “Symphonic Treachery”. We passed the laptop around taking turns writing and reading out loud as we went. We even had one of the nurses shaking with laughter. It felt like a triumph.