As time moves forward, my symptoms and problems are changing. The infection that originally landed me here in the hospital has been taken care of! The only lingering symptom from that is a drug rash on my back and belly that’s fading with time.
But sadly, there are other things keeping me in the hospital now. Last night I got an MRI of my pelvis to see what’s going on with my poor butt. Abscess? Thrombosed hemorrhoid?? It turns out neither! It’s a very swollen, angry vein. It’s very painful, but the best of all outcomes.
The pain has been so bad I’ve now got oxycodone to help me get through the day. “I don’t want to be part of the opioid epidemic this country is in!!! Isn’t there something else?” “Heidi, it’s ok to take pain medicine when you’re in pain.” “But I’ll get addicted!!!” The worry of addiction was soon resolved after I realized the vomiting that comes with taking oxycodone.
I had eaten salmon, asparagus, a little cheesy pasta, and a sugar cookie for dinner. Once I realized the food wasn’t staying long, I started to worry about the flavor of the salmon on it’s way out… But to my pleasant surprise, it was the most pleasant tasting vomit I’ve ever experienced. If you’re planning on a hurl, eat a sugar cookie first! I also have all I need for a speedy cleanup: nasal saline and mouth rinse saline. Takes care of it in no time flat.
Not only did I have great company for lunch today, but while we were eating, exciting things were happening back home:
It’s been a long time since we’ve felt settled. A year ago we were in California, sorting out what should go in storage, what should go to Cameroon, and undergoing quite a lot of stress to get diplomatic passports, visas, orders, kids’ overseas screenings, etc. Since then the moving has never quite stopped. We’d only just received our last boxes of things in Cameroon in November. We hadn’t finished hanging pictures on the walls when it was time to uproot and come here. The paperwork has been a nightmare… But today a moving truck arrived- our furniture from storage is here!! And what a blessing that I’m in the hospital! I’m not supposed to be exposed to any mold, mildew, spores, too much dust or anything like that. Queen Cancer lets everyone else do the work.
Speaking of work…
I’ve been given a noble quest!!! My lovely transplant coordinator, nurse Lauren, has given me the task of coming up with a bone marrow transplant-friendly workout! I told her to find me a room with a bleachable floor and some yoga mats. She was able to right away! It’s going to be epic.
- Praise for the healed port!
- Praise for work on the exercise plan!
- The paper work nightmare to get straightened out (and that we get reimbursed for Mike and the kids’ plane tickets from Cameroon to Chicago).
- My pain to go away… it’s also making my blood pressure high.
- No more infections, mouth sores, butt sores pleeeeeeeease.